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NKC and intralipid????

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NKC and intralipid????

Postby jordan22 » Fri Aug 04, 2006 11:07 pm

anyone know anything about treating natural killer cells levels with intralipid instead of IVIG????????????
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
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Postby jordan22 » Sun Aug 06, 2006 5:04 pm

:?
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
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Postby dg8268 » Fri Aug 18, 2006 3:21 pm

Hi there. I just finished my 4th IVF treatment. I got pregnant 3 times and miscarried. I was diagnosed with natural killer cells. I was treated with IVIG and had a bad reaction. Then I was treated with solucortef and dexamethasone. It didn't work. I am trying a new treatment this cycle called intralipids. My retrieval will be end of sept. Hopefully this will work. What is your story?


Dana
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Postby Dory » Fri Aug 18, 2006 5:16 pm

How do you know you got natural killer cells? do they do a test before they start any treatment?......

My Dr can't explain why my IVF isn't working is there a possiblitity i have them?

Thanks Rachel
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IVF - Nov 05 BFN, FET - May 06 BFN
FET - July 06 BFN, FET - Nov 06 BFN
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Postby jordan22 » Sat Aug 19, 2006 2:08 am

Dana.. my story is no where near as hard as yours.... I just happen to be blessed with a great RE that specializes in imunology... i had one failed IVF and only one misscarriage.. (but have been TTC for 8 years) My RE offered me the test for the NKcells and I decided to do it.. came back a 12 and my IGA level was also very low (IGA level is basicly my imune system) and so I can not do IVIG becuase of that bad reactio that you have... the RE told me that the intralipids are JUST as effective and used a lot in place of IVIG and will soo replace IVIG... So we have a great chance... I am waiting until Oct to go again.. Good luck...

Dory.. as your RE about getting tested.. this is an test that is not done all the time.. and costs about 500.00 (only a few labs do the test) If you fear this could be an issue then I would get tested.... they don't usually test unless there are many (4 or more) failed IVFs or misscarriages... but to me.. there was no point doing another IVF without testing..

good luck and keep us posted.. there is not enough info about NKC....
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
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Postby dg8268 » Sun Aug 20, 2006 1:09 am

I did 2 cycles of IVF with my first doctor and they couldn't explain the miscarraiges. I decided to get a second opinion and my new doctor immediately tested me for NKC. The test ws expensive, but soooo worth it because we now know what the problem is. Unfortuantely, like I said, the 1st two treatments didn't work.

Jordan...Have you used the intralipids or you are waiting until October? I take my last birth cotrol pill on 9/6 and start my Lupron 9/2. I am guessing my retrieval will be around 9/23 or so. I am sooooooooo hoping this works. We have only been doing this 2 years, but went through 7 IUI's and 4 IVF's. I feel as if I have been doing it forever!!!
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Postby jordan22 » Mon Aug 21, 2006 3:35 pm

Dana.... I am waiting until Oct to use the intralipids.. (we just found out about the NKC) I do know (after much reaserch) they IVIG and Intralipids are the only answers to NKC ... nothing else will take care of it.. and I am guessing that you have low IGA levels (that is you imune system) and that is why you had the bad reaction to the IVIG.. I think you have a GREAT chance of the Intralipids working.. (and it is MUCH cheaper then the IVIG) Good luck...

I prob wont even start my Luypron until the end of Sept.. seems so far off now.. but I know time will fly...

please keep me posted on how you are doing...
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
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Postby dg8268 » Mon Aug 21, 2006 6:31 pm

Good luck with your next cycle. The time will definately fly! My doctor has never used the intralipid treatment yet. She is working with some doctor in chicago. She seems very optimistic. I am sort of like her guniea pig!
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Postby jordan22 » Tue Aug 22, 2006 1:46 am

yikes.. not fun... but rest assured that my RE and otheres) have used the intralipids with a lot of success... Your DR has a reason to be optimistic.
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
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Postby jordan22 » Wed Aug 23, 2006 9:18 pm

just moving us up :wink:
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
jordan22
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Postby jordan22 » Fri Sep 01, 2006 10:28 pm

just moving us up.. lol


any news???
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
jordan22
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Postby dg8268 » Fri Sep 01, 2006 11:07 pm

I start my Lupron tomorrow. My last pill is on tueday so I should get my period by Fri and start my shots. How about you? Oh yeah not til october, right?
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Postby jordan22 » Sat Sep 02, 2006 6:09 pm

yep.... tick tock.. lol
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
jordan22
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Postby jordan22 » Thu Sep 07, 2006 5:58 pm

Did you do it yet??? It looks like I do mine on Oct 25th ISH.... eeekkssssss
Tonia 33 DH 41 DD 10
IVF # 1 7/11/06 BFN
IVF #2 11/2/06 BFN
FET #1 12/21/06 BFP.. lost at 5 weeks
jordan22
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Posts: 261
Joined: Sat Jun 17, 2006 7:45 pm

Postby dg8268 » Thu Sep 07, 2006 9:03 pm

I took my last pill last night so I should get my period in the next few days. Then i start my shots. Retrieval should be end of end of Spetmeber. sooooo nervous!
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