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Postby olivia » Sat Apr 16, 2005 3:49 pm


I am 27 and was diagnosed with endometriosis a few months ago after a laparoscopy.
I am relieved at finding an answer to my pain but now really worried about fertility. The doctor didn't explain things very well to me just saying that I have a degree of endometriosis on the left side, a deformed right tube but still have a certain degree of fill and spill!. We have been trying for a baby for just over a year with no luck. What will be the next step for us? I would really appeciate some advice.

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Postby ogr1 » Sat Apr 16, 2005 4:07 pm

hello and know that there has been a huge rate of women that have gotten pregnant with ivf..
you do need to post on the gen forum..
you will find alot of friends and a huge amopunt of suport.
and alot of women the have gotten pregnant with endo...

and again i am so glad that you have found this forum..
i would have been lost with out it,.. :)
we werent blessed with our babies to raise here but we our blessed with our grandaughter
and all of our many adopted and foster children that touch our lives
and i am glad to add that our 6th grandchild will be born this spring!!!!
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Postby AliasR » Sun Apr 17, 2005 2:02 pm

Hi Olivia, glad you joined this wonderful forum!

Re your question, found this page and maybe it will help you understand what to expect.
http://www.umm.edu/patiented/articles/w ... 0022_6.htm

I found a lot of useful information on the web to get me started. When we found out we had no sperm we decided to go for a private clinic since the national health service takes forever around here. I googled and googled until there was not pretty much else to google for, waited for the appointment and what the doctor had to say was pretty much what we had learned about.

At least you now know what's wrong and can actuallaly do sthing about it - it's so frustrating when you don't know what's wrong!

Hope this has helped! Keep us posted!

TTC 2y Me 31 Dh 34 NO SPERM - DI
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Postby LittleP » Sun Apr 17, 2005 2:40 pm

Hi Olivia

Welcome to the boards - you will find this place becomes a big part of your day very quickly :D

As Becky has said, come and join in on the General Forum and also there is a Introduction forum where you can let everybody know about yourself.

When you are ready hop across and join us. :D

Little P
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Postby Sand » Sun Apr 17, 2005 3:09 pm

Hi Olivia .. A quick post to say Welcome to the site. I hope you find it as useful as I have.

Sandra x
Me 41 yrs old - dh 49 yrs old. ttc 110 yrs.
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
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Location: Lancs, England

Postby ogr1 » Tue Apr 19, 2005 6:42 am

just checking on you..
i havent seen you post on the gen forum yet..

when you are ready we will be there..
just know that you have friends when you are ready :)
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Postby NickiMark » Tue May 03, 2005 8:56 am

Hi Olivia, I saw your reply to my phantom pg thread. Has your AF come yet???

Anyway, my friend has Endo..... (cant spell) She's doing ivf, had 6 goes, 2 +ives but miscarried both :(
She's now on 7th go, after having both tubes taken out. I am waiting for a BFP from her very soon!

Good Luck dear!!
TTC 6yrs......Have jumped off the rollercoaster for now, too many BFN's and too much heartache, to keep going....Moving on to fulfil other dreams!!!
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Postby ogr1 » Tue May 03, 2005 2:21 pm

heres to her and everyones bfp :)
we werent blessed with our babies to raise here but we our blessed with our grandaughter
and all of our many adopted and foster children that touch our lives
and i am glad to add that our 6th grandchild will be born this spring!!!!
Board Veteran
Posts: 4301
Joined: Fri Aug 29, 2003 7:11 pm

Postby bubblymichelle » Tue May 03, 2005 9:23 pm

I just want to say hello and welcome Olivia, I also have Endo and I am now blessed with a lovely son Alex Mitchell who will be 15 months old tomorrow. I think maybe your next step if you have been trying over a year may be a drug called Clomid which will help release your eggs. I really do hope this works for you. Unfortunately I tried it for 6 months and it didn't work for me. We paid private and had our 1 attempt at ICSI and it worked and now we have our son.

Good Luck.
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Location: West Midlands

endometriosis and infertility

Postby charlysteed » Mon Jul 18, 2005 10:26 pm

Hi Olivia

I am an acupuncturist based in London and have recently completed a research project on 'acupuncture and the treatment of endometriosis associated with infertility'. Based on my findings, from a Western point of view, if you are diagosed with endometriosis and you want to conceive, the treatment options usually include a) surgery if the endometriosis is severe (eg. chocolate cysts and severe lesions) or b) IVF/ARP (possibly in combination with surgery) c) wait and see. The use of medical drugs such as danazol are usually only recommended where the endometriosis is accompanied with pain but research shows that medication is unlikely to assist with conception.

From a Traditional Chinese Medicine point of view, the options are Chinese Herbs and/or Acupuncture. You can contact the British Acupuncture Council to find a qualified practitioner close to you as I see you do not reside in London.

Research shows that Traditional Chinese Medicine (TCM) can help resolve endometriosis lesions, reduce pain, and improve chances of conception. Whilst much of this research was secondary research (ie. from research journals, medical texts etc), I treated a patient with acupuncture who had received a Western diagnosis of primary infertility and peritoneal endometriosis (left) after a series of fertility tests. I treated her for three months and she became pregnant at the age of 33 after 12 months + of trying to conceive.

Whilst this single case is obvioulsy not representative of the entire population of women with endometriosis, my research and case study demonstrated that TCM is an option for women with gynaecological complaints. It can be used as an alternative to Western medicine or in support of Western medicine.

Good luck with everything.
Charlotte Steed MAR, MBAcC, BSc(hons), LicAC
Member of the British Acupuncture Council
Member of the Association of Reflexologists
Website: http://www.acupuncturespace.com
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Postby jennifer79 » Thu Oct 13, 2005 3:37 pm

hi there i have the same condition and also have psoc , i am having an op next week , just posted a message about it , there are lots of things they can do before it gets as far as ivf so dont panic , i have been trying 2 years with no luck but fingers crossed that my op is a sucess . if not im not sure what my next step would be but ivf has not been mentioned yet .
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