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I have PCOS and Endometreosis - advice needed!

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I have PCOS and Endometreosis - advice needed!

Postby Kate Breen » Tue Nov 30, 2004 2:02 pm

I am 31 and was diagnosed with these conditions 6 years ago and was on medication to control the symtoms until February this year when we decided to try our luck at starting a family. I'd lost a lot of weight prior to stopping medication. I was amazed that I did menstruate as I had assumed that I wouldn't. However, since then my periods have become more and more erractic - about 2 weeks late and lasting for less and less time. Not pregnant yet. My tummy is bloating out again (so much for those smaller clothes!), but I feel okay in myself in that I'm not getting the drastic mood swings that I was experiencing before. Trying to stay optimistic and positive - doesn't always work! My GP wants to refer me to an Endometreosis specialist as he has concerns prescribing ovualtion induction treatment until he knows that my tubes and 'what have you' are clear of obstruction. Is this standard? I just want the tablets now so that I can have a Christmas Pudding - wishful thinking I know.
Kate Breen
Posts: 1
Joined: Tue Nov 30, 2004 1:50 pm
Location: Edinburgh


Postby Amers Or » Mon Mar 14, 2005 1:16 pm

Hi Kate, hows it going now??? Just going through some of the forums and noticed yous post in November last! What did you end up doing??? I also have PCOS & Grade 4 Endo :cry: Had a major gynae op last June- was originally to remove a huge cyst off my left ovary but when the surgeon started keyhole he said that I was riddled with endo - had to cut me open and took the endo away that was attached to a lot of my organs - along with 1 damaged fallopian tube and a bit of the left ovary!!! It was a shock for me when I came round to be told that all of this happened and instead of the next stage being taking the Clomid tablets he said that it was very unlikely that I would conceive myself naturally and recommended IVF as being the only option! :cry: :cry: Now I am at the 2ww stage of IVF, day 3 :o It has been a long turbulent rollercoaster ride but am glad that I've reached this stage and live in hope :wink: :wink: Sorry I think I might have gone on a bit!!! Take care xx
35 yrs old
1st IVF cycle
PCOS, Grade 4 Endometriosis, 1 Fallopian tube and 1 functioning ovary
IVF Mar '05 -BFN
2nd IVF Oct '05 - BFP
Baby girl born 21/7/06
Amers Or
Posts: 84
Joined: Sun Feb 20, 2005 1:14 pm
Location: Co. Derry, N.Ireland

Postby Tiger » Wed Mar 16, 2005 12:25 pm

Hi Kate (^o^) Tiger here,

I too suffer endometriosis (yes, my tummy is constantly bloated)... and just last month via operative laparoscopy we found out that endo has blocked both my tubes and further, they discovered adenomyosis in my uterus as well.... . We are now awaiting for IVF consultation in May.

I was diagnosed with endo back in June 1999, since I suffered so much pain and I was not ready for a baby back then, they placed me on continuous BCP after the surgery. For next 4 years (with just 6 months break in between) I went without my period. At post-op consultation they told me that my tubes were clean and undamaged by endo so I should not have a porblem conceiving... In June 2003 my hubbie and I got married and we decided to try out for a baby. So I got off my BCP and regained my period after few months. Typically my endo pain returned and it gradually got worse. With this pain and 12 months of trying without any luck, we finally consulted endo specialist....

The silly thing is I always thought that I was not conceiving because my girly-bits were bit messy with endo, so if I had another laparoscopy to clean it all out, I will be fine. So like Amers (Hi Amers!) we were absolutely devastated when they told us that we needed IVF to help us conceive.

So what I want to tell you Kate, is that Yes, pls go and get your insides checked out before they start you with drugs. Laparoscopy is never nice... and recovery is always difficult with any surgery, but I believe it is necessary to find out exactly what is going on in your body. We are glad I went through with it.

Good luck Kate and let us know how you get on.
Blocked tubes due to endometriosis.
Posts: 428
Joined: Tue Mar 01, 2005 12:23 am
Location: Sydney, Australia

Postby SallyP » Thu Mar 31, 2005 2:33 pm

Dear girls,
Hope I can give you a bit of hope and light here.
I was diagnosed with grade 4 endo, blocked tubes, loads of adhesions and loads of surgery etc etc. I don't need to go into it - you know the story!

Anyway, I saw an endometriosis specialist who also works in repro medicine, and he looked aftre me and gave me the best advice.

Because of the severity of the endo, I had IVF straightaway, but on the scans, they could see that endo deposits had returned from previous surgery. That attempt sadly failed.

My second attempt at IVF worked. I was given an approximate date when the next IVF would begin, so about 3/4 weeks before the IVF began I had a laparoscopy to remove as much endo as possible. The consultant also told me to take cod liver oil and evening primrose oil supplements as well up until the IVF began as that also reduces endo severity and pain.

I had 1 period after the lap and immediately started on Buserelin nasal spray which I took to downreg before the IVF. This was because in my case the endo was incredibly fast growing and aggressive, so my consultant felt that if I had any more than 1 period this would start the endo building up again which could in turn make the second IVF fail.

So we had a BFP and I am now the proud mum of Jay who's 14 months old. I had a Mirena coil fitted because that has been shown to stop endo recurring and actually reduce existing endo.

So please keep your chins up, make sure you see a fertility person who has a good understanding of endo and stay positive.

love Sally xxx
Me - severe endo, DH - poor sperm. First IVF ICSI Nov 02 neg. Second IVF/ICSI May 03 Positive.
Miracle baby Jay born on 27th January 04
Posts: 228
Joined: Tue Jun 17, 2003 10:09 am
Location: Cheshire

Postby Sand » Thu Mar 31, 2005 5:19 pm

Sally - yours really is an uplifting story. Thanks for sharing it - it should give hope.

Sandra x
Me 41 yrs old - dh 49 yrs old. ttc 110 yrs.
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
Board Veteran
Posts: 3364
Joined: Sun Mar 14, 2004 11:35 am
Location: Lancs, England

Postby jennifer79 » Sun Jul 03, 2005 7:13 pm

hi i have just been told i have pcos , are the 2 conected or are they to diffrent condishions
Posts: 6
Joined: Sun Jul 03, 2005 6:44 pm

IVF and endo

Postby water » Fri Nov 04, 2005 7:24 am

Heloo everybody
I have an endo on my left ovary around 2 cm. I had three failed IUI and now I am on my first IVF. Praying that it will work this time. Does anyone know about mild endo and IVF succes chances.
Posts: 3
Joined: Fri Nov 04, 2005 7:16 am

Postby Sand » Fri Nov 04, 2005 10:13 pm

Hi Water

Just a quick post from me to say Hello. I hope you find the Site supportive and informative ..

Sandra x
Me 41 yrs old - dh 49 yrs old. ttc 110 yrs.
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
Board Veteran
Posts: 3364
Joined: Sun Mar 14, 2004 11:35 am
Location: Lancs, England

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