IVF over 40 Buddy Group........Membership Drive

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 9:05 pm

Lynnie, call your regular OB. I bet the would work you in today for an US if you told them what was going on. It would only take the 5 minutes to look at the baby for you. Have you tried that yet?

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 9:09 pm

Try to ask about it here. You can post questions to a geneticist. I will look for more sites.

http://www.medhelp.org/posts/show/313070

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 9:16 pm

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 9:18 pm

http://www.thetech.org/genetics/ask.php

This one looks like they ask soon after the question are asked. It is a geneticist at Stanford School of Medicine and the 3 most recent posts from within the last week have been answered already

lynniecat · Post by **lynniecat** » Mon Feb 16, 2009 9:20 pm

My reg ob said no! Its not their standard of care to do one before 18 weeks. It was the nurse. I was pissed.

santa · Post by **santa** » Mon Feb 16, 2009 9:31 pm

Thanks for the warm welcome. Sorry if I don't respond to everyone personally just yet, i am still trying to link names to each individual story...

In response to a couple of questions, I have high FSH - around 18. Last IVF, it was 4 - but I was told that you are only as good as your highest FSH. I read an interesting article by an RE that said that trying to lower your FSH through accupuncture, diet, exercise, yoga, etc, is like trying to fix the indicator for low gas in your car, instead of actually filling up the car with gas. Basically, FSH is only an INDICATOR of low ovarian reserve as opposed to something that can CONTROL fertility. This RE was saying that AMH is the only really reliable indicator.

Hubby is watching a crime drama on TV while I tear my hair out researching and stressing.. ugh. It is lovely to be able to share things with people who know exactly what I am going through.

Lots of love ladies

S.

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 9:37 pm

Santa, i will get back to you on that later. I have one more link for Lynnie then i have to get something done around here.

http://www.who.int/genomics/professiona ... index.html
This one is from the World Health Organization. They give the email addresses to multiple geneticists that are willing to answer questions.

Ask the expert
Welcome to the GRC expert group!

Through its long standing experience in health care over the years WHO has come in contact with experts in health care from all over the world.

This is a judiciously selected group of health professionals in genetics and related disciplines. They are committed to the development of genomics, public health systems and public engagement in the development of science and technology. They recognise that genomics has implications for all avenues of society and to this end work to inform and clarify all doubts or queries raised by this growing field.

You are encouraged to contact them to adress any queries you have on genetics and related issues. For your use and convenience, they have been listed by area of expertise with detailed contact information and a brief biography describing their background.
- Clinical geneticists
- Genetic counsellors
- Genetic researchers
- Nurses
- Ethicists

You click on each category and there are multiple bios and links.

Lynnie, did you explain to the nurse what is going on? All of your docs are pissing me off.

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 10:21 pm

Santa, i have to be quick. AMH only tells you that you have diminished ovarian reserve. Your AFC should already have told you that. So no need for AMH as it doesn't tell you anything new.

Yep, you are only as good as your highest fsh. All the elevated fsh tells you is that your body has had to pump out more and more fsh trying to squeeze your ovaries into poping out an egg. It tells docs that your ovaries are already use to high levels of FSH. Thus, they are not gong to be as easy to stimulate with exogenous FSH. It is only an indicator of how well you are likely to respond to stims.

The good news is they have found you can get around the high FSH with estrogen priming protocols. Basically the estrogen keeps your body from producing much fsh or lh. That gives the ovaries time to become up regulated to them. That means when you start throwing lots of FSH and later LH onto the follies they will respond more like they would in ovaries that are not use to exposure to extra fsh. This just helps you have a better response to stims. It also keeps from having a lead follie or two that can screw up the entire retrieval process. This is being used in conjunction with an antagonist protocol which uses ganirelix instead of lupron. It keeps you from ovulating early while on stims.

Sorry made a short answer long as usual. Does any of that make sense. I will clarify for you if needed.

The edited list may be tonight or tomorrow i really have spent way too much time on here as usual. Renee, i just can't help myself. Kat, i really do need a 12 step program. I have got to get a grip!!!!

Later ladies.

lynniecat · Post by **lynniecat** » Mon Feb 16, 2009 10:58 pm

Yes I explained and she said only gross defects could be seen at this point. I am guessing she has no idea what I was telling her....

She also said there were not appointments available.

lynniecat · Post by **lynniecat** » Mon Feb 16, 2009 10:59 pm

Oh and thanks Kelly, I posted me question on that site you sent me the link for...

Suzanne18 · Post by **Suzanne18** » Mon Feb 16, 2009 11:02 pm

lynnie... that's very frustrating... I wish I had something more supportive to write, but unfortunately, I have less experience than you (and some of the other girls here) with OB/GYN's... so I'll step aside on this one and just pray for the best possible outcome.

santa... I do have a weird FSH story and yes, I've heard/read the same things about your being only as good as your highest FSH... but some GOOD NEWS... see if you can follow this... since 2006, my FSH values (most recent being the last one) are 7.6, 5.4, 5.64, 14, and 3.6... so my first attempt at IVF was the cycle with the 14 (figures!) and it was cancelled pretty quickly because I had an ovarian cyst and only had three or four follicles... my RE is strict about not doing an ER if he doesn't think he'll be able to retrieve a certain number of eggs... I pretty much went from this amazing, youthful FSH gal to a 14!... so the nurse whispered to me "keep thinking the 14 is a lab error" (I thought that was cute) and the RE decided to try an estrogen priming protocol the following cycle... that's the cycle with the FSH of 3.6 and as I have said repeatedly, I had (12) eggs retrieved and (9) fertilized... the nurse and I agreed that we weren't sure if the estrogen priming protocol actually helped in any way, but that we'd let the RE think it did if it made him feel good lol... but the point is, what the hell is up with that FSH story???... I'm only as good as a 14, but they retrieve 12 eggs???... I'm NOT bragging, I just want us 40+ girls to believe in the possibility.

SueQ... I understand your being disappointed with only 2 out of 3, but I read that the embryologists are VERY pleased when they get 60-70% fertilization... so you're right there with 67%... the little guys did well

... I'll pray for nice 8+ cell embryos on day 3!

Liam'sMommy · Post by **Liam'sMommy** » Mon Feb 16, 2009 11:06 pm

Lynnie, go back up through the posts. There are three different sites i found for you to ask geneticist. On the last one you get the emails for multiple geneticists to ask them personally.

I understand that they could only see gross abnormalities but i thought you wanted to take another quick peak for peace of mind because you thought the baby didn't look normal. Or have you changed your mind on that. You probably already said that but i missed it.

HUGs

missygirl · Post by **missygirl** » Tue Feb 17, 2009 3:23 am

Santa,

I have an FSH story as well....on my first attempt at IVF my FSH was 18.1 so they cancelled me until the next month. I was SURE I was doomed as it is an indicator that the body is having to work VERY hard to produce eggs. The next cycle, my FSH was 6.1 with NO extra measure being taken (Never heard of the estrogen thing...). They only retrieved 4 eggs, 3 of which made it and were transferred, one of which resulted in my beautiful daughter! I was 39-40 at the time of this.

Now at 41, we started again the end of January and my FSH was 7 right off the bat so maybe the lab test was wrong or maybe it goes up and down from month to month. I'm currently sitting here with two embryo's implanted and waiting for Saturday to come so I can do a HPT!! HCG test on Monday.

Hope that helps!

Missy

AKMom · Post by **AKMom** » Tue Feb 17, 2009 5:11 am

Hi Y'all

My nurse called, she told me that I have 3 Follies at 10. and I have 7 on the left and 5 more on the right that still need to grow. They did not change my meds, and I have another U/S and blood draw on Thursday. My doc says this is good/normal and its not a big deal---that he wants my follies to be around 18-22 4 trigger. Does this sound right Kelly? I did not get my estradol number yet, perhaps tomorrow.

I may have to order more Follistem....I only have enough thru wednesday eve. I hope not, I hope to trigger and get this going.

Any similarities out there?

Thanks, L8tr Ladies

CourgarKat

AKMom · Post by **AKMom** » Tue Feb 17, 2009 5:56 am

Kell follow these steps!

1) I will have a cup of coffee in the morning and read my PAPER newspaper like I used to, before IFV-Inferility.com

2) I will eat breakfast with a knife and fork and not with one hand typing.

3) I will get dressed before noon.

4) I will make an attempt to clean the house, wash clothes, and plan dinner before even thinking of IFV-Inferility.com

5) I will sit down and write a letter to those unfortunate few friends and family that are Web-deprived.

6) I will call someone on the phone who I cannot contact via IFV-Inferility.com.

7) I will read a book... if I still remember how.

I will listen to those around me about their needs and stop telling them to turn the TV down so I can keep everyones name strait on IFV-Inferility.com.

9) I will not be tempted during TV commercials to check for email.

10) I will try and get out of the house at least once a week, if it is necessary or not.

11) I will remember that my bank is not forgiving if I forget to balance my checkbook because I was too busy on IFV-Inferility.com.

12) Last, but not least, I will remember that I must go to bed sometime... and that I V-Inferility.comalways be there tomorrow..

I hope I've helped you out a little. We LOVE you.

CourgarKat

IVF over 40 Buddy Group........Membership Drive

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