Ghost - Need Advice Please - Devastated

Discussion forum for those particularly interested in IVF and embryo transfer including frozen embryo transfer.
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JenNJ
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Posts: 16
Joined: Tue May 05, 2009 8:23 pm

Ghost - Need Advice Please - Devastated

Post by JenNJ »

I am 37 and had an FSH of 19 a few months ago and after months of searching for a RE that is high FSH friendly, we went to do an IVF cycle last month. I had cysts on my overies so I was put on BCP for 1 month. I had spotting the whole time. My last pill was Saturday and the spotting continued. So, Monday I called my RE's office because I did not know if it was a period or still spotting. They wanted me to come in today. I still never had a "normal" period. They tell me I am ready to start my IVF and should take my meds starting tomorrow night.

I get a call from the RE's office a few hours later - my fsh is 33! :shock:
They want me to wait until next month and see if it comes down, but if we want they will try stimming me now and "give it the old college try" as they said.

I don't know what to do. Can FSH jump that extreme in just a few months?
Did my not normal period or not knowing if it was a period have anything to do with it?
What would my chances of it dropping much be?
Should I try waiting a month or give it a shot now or just go straight to DE?

Sorry for the long post but any advice would be great.
Me-37 Blocked tubes and high FSH
DH-39 Perfect

10/2008 - Lap to repair tubes
7/2009 - BCP - cysts on overies
9/2009 - 1st IVF cycle
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to_have_fun08
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Joined: Fri Apr 11, 2008 4:50 pm
Location: Illinois

Post by to_have_fun08 »

Sorry don't have any answers to your FSH questions. What is your Antral follicle count? That could give you a good indication on how many follicles that you could develop if stimmed correctly. You could start stims and see how you respond, if it isn't good then you could cancel your cycle before ER. I don't think RE's like this but it is your money and your body, they can't make you go to ER. If you had to cancel you would be out the cost of meds and for the office visits for monitoring but this could give you a good indication of how you will respond. Maybe you would respond well and could go ahead to ER. If you don't respond at all, it would give you some insight if you should just go with DE. Just a thought

For me I have been through lots of cycles, some canceled, and some just plained sucked. Now I am going to do DE if my next cycle is a bust but for me I would have to know for sure that I couldn't do it with my eggs before proceeding with donor.

Good Luck!!!

Chris
Chris 40- DH 41
6 IVFs Cycles - BFN's
DE Cycle 2/2011 -BFP Jacob born 11/11/11

FET 7/2012 - BFP - Kaylee due 4/3/13

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JenNJ
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Joined: Tue May 05, 2009 8:23 pm

Post by JenNJ »

to_have_fun08 wrote:Sorry don't have any answers to your FSH questions. What is your Antral follicle count? That could give you a good indication on how many follicles that you could develop if stimmed correctly. You could start stims and see how you respond, if it isn't good then you could cancel your cycle before ER. I don't think RE's like this but it is your money and your body, they can't make you go to ER. If you had to cancel you would be out the cost of meds and for the office visits for monitoring but this could give you a good indication of how you will respond. Maybe you would respond well and could go ahead to ER. If you don't respond at all, it would give you some insight if you should just go with DE. Just a thought

For me I have been through lots of cycles, some canceled, and some just plained sucked. Now I am going to do DE if my next cycle is a bust but for me I would have to know for sure that I couldn't do it with my eggs before proceeding with donor.

Good Luck!!!

Chris

Thanks Chris! Usually I have had 2 follies each side, today they told me they saw 1.

They did tell us we could absolutely cancel before ER even if I did respond to the stims.

I feel exactly the same about wanting to at least try with my own eggs before going on to DE- but even our RE's office said they have never had a patient with that high of an FSH ever, let alone one that made it to ER and ET.

Good luck to you! I hope this cycle gives you a BFP!
Me-37 Blocked tubes and high FSH
DH-39 Perfect

10/2008 - Lap to repair tubes
7/2009 - BCP - cysts on overies
9/2009 - 1st IVF cycle
Ghost
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Posts: 4150
Joined: Mon May 29, 2006 5:01 pm

Re: Ghost - Need Advice Please - Devastated

Post by Ghost »

JenNJ wrote:I am 37 and had an FSH of 19 a few months ago and after months of searching for a RE that is high FSH friendly, we went to do an IVF cycle last month. I had cysts on my overies so I was put on BCP for 1 month. I had spotting the whole time. My last pill was Saturday and the spotting continued. So, Monday I called my RE's office because I did not know if it was a period or still spotting. They wanted me to come in today. I still never had a "normal" period. They tell me I am ready to start my IVF and should take my meds starting tomorrow night.

I get a call from the RE's office a few hours later - my fsh is 33! :shock:
They want me to wait until next month and see if it comes down, but if we want they will try stimming me now and "give it the old college try" as they said.

I don't know what to do. Can FSH jump that extreme in just a few months?
Did my not normal period or not knowing if it was a period have anything to do with it?
What would my chances of it dropping much be?
Should I try waiting a month or give it a shot now or just go straight to DE?

Sorry for the long post but any advice would be great.
I try not to tell people what they should do as a course of medical treatment. I try to just post information.

FSH can jump like that. For example, it may have been suppressed by elevated estradiol before (you mentioned cysts). If/when the estradiol is brought down (by addressing cysts), FSH would be expected to rise. That is known. In other words, it's possible your 33 is more representative than your 19 reading. Maybe. If the estradiol was much above 50 when they measured it, then the FSH can be suppressed.

Another theory, not yet proved to my knowledge, is that FSH can fluctuate depending on how many early follicles there are. Perhaps in a month where FSH is lower, you might be able to recruit more follicles. Maybe.

It would also make sense that, regardless of the number of antral follicles, they would be more sensitive to FSH in a month where FSH was lower, and less sensitive when FSH was higher. In other words, even if the number of follicles is the same, it should be easier to recruit them in a month where FSH was lower. After all, we recruit them with FSH. In other words, to get your FSH appreciably above your baseline of 33, you'd need a ton of FSH meds. To get your FSH significantly above a baseline of 19, it would not take as much. It would still be a lot though, because 19 is already pretty high, as you know.

It's an unfortunate truth that those who must spend the most $$$ to stim have the lowest chance of a resulting pregnancy.

I like that your clinic lets you decide how to proceed. It's your money, your life, and your potential children. You might see if your clinic can give you a realistic estimate of your chances and costs (including meds) given your FSH levels, and also the costs and success rates for donor cycles. Donor cycles are very expensive and generally not covered on insurance.

Sorry I rambled. I hope this helps.
Avoid IVF and surrogacy in Ukraine. Ukrainian centers pay shills to post here under numerous sock accounts pretending to be patients in Ukraine. Centers using such deceptive advertising cannot be trusted and should be avoided.
to_have_fun08
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Posts: 2023
Joined: Fri Apr 11, 2008 4:50 pm
Location: Illinois

Post by to_have_fun08 »

JenNJ - Thanks for the well wishes -- There is a lot to think about especially if you are paying out of pocket. I have seen lots of success with DE. If it wasn't for money concerns, I would be going to DE for this cycle. I am tired of being let down by my own eggs and also sick of bing on this IVF roller coaster ride. My RE says the chances of conceiving with DE is 70% and only 10% with my own.

Hope you come to a good decision. I know that your AFC can change from month to month but from what I hear it won't be a drastic increase.

Also I just read what Ghost posted. If you do have insurance, some of a DE cycle might be covered. My insurance will cover all the medical cost such as testing, monitoring, ER and then the ET for donor egg. Also the meds. It doesn't cover the cost of any agency fees to find the donor or the actual payment to the donor.


Chris
Ghost
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Joined: Mon May 29, 2006 5:01 pm

Post by Ghost »

Something tells me I should have tried to be more upbeat.
Avoid IVF and surrogacy in Ukraine. Ukrainian centers pay shills to post here under numerous sock accounts pretending to be patients in Ukraine. Centers using such deceptive advertising cannot be trusted and should be avoided.
to_have_fun08
Valued Contributor
Posts: 2023
Joined: Fri Apr 11, 2008 4:50 pm
Location: Illinois

Post by to_have_fun08 »

Ghost -- I think your replies are good. Sometimes the real truth might hurt but it is good to know the dirt before spending the $$ on a cycle.

Thanks for being there for us and answering all our annoying questions.

We really missed you when you were gone.



Chris
Chris 40- DH 41
6 IVFs Cycles - BFN's
DE Cycle 2/2011 -BFP Jacob born 11/11/11

FET 7/2012 - BFP - Kaylee due 4/3/13

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JenNJ
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Posts: 16
Joined: Tue May 05, 2009 8:23 pm

Post by JenNJ »

Ghost wrote:Something tells me I should have tried to be more upbeat.
Chris and Ghost - Thanks so much for your replies!

Ghost - No need to sugar coat things! I wanted an honest opinion!!! Even my low FSH is not low by a long shot. I was really just shocked about the extreme rise in such a short time. Thank you! :)
Me-37 Blocked tubes and high FSH
DH-39 Perfect

10/2008 - Lap to repair tubes
7/2009 - BCP - cysts on overies
9/2009 - 1st IVF cycle
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