High FSH/ Poor Responders

Lee · Post by **Lee** » Sun Sep 11, 2005 1:42 pm

Hi Everyone,

Found this thread thanks to Sandra, did reply to you Sandra asking you what you meant by a thread but now I have found it.

Just discovered I have high FSH at 22 at the moment and steadily rising. Taking clomid at the mo for another 4 months but I am beginning to wonder whether I should head straight for the IVF clinic as my consultant has offered that as our next step. Although that was before my last FSH result, also had hot flushes, dizziness, night sweats and headaches this month (didnt take the clomid). This is all very new to me anyone that can give any advice would be much appreciated, I have learnt more off here in the last two hours than I have in all the hours I have spent searching the web!!
Are there any vitamins or minerals I could take? What about the diet by Zita? Some of you have mentioned where can I find all this info?
I am so relieved I have found people like me as no one around me can understand what this feels like.

Look forward to hearing from you.

Thanks

Lee

Sand · Post by **Sand** » Sun Sep 11, 2005 3:20 pm

Glad you found the thread Lee. I'm sure someone will respond re the Zita diet .. It's in the book I was referring to on my other post. It really is worth the £15 !

Sandra x

Jeni Babes · Post by **Jeni Babes** » Sun Sep 11, 2005 8:21 pm

yep Lee
Sand is right, as well as Debra.(are you girls getting % in sales for this book?

)

It's the best £15 i've ever spent on helping myself... good luck with the detox/fsh lowering eating plan. I've been on it for nearly 3 weeks.

Also I am taking extra zinc, omega oil, selenium, l'carnatine, and multivit/folic acid. Being positve helps too.

keep posting and Let us know how you get on Lee.

Love
jen
xxx

tracker · Post by **tracker** » Mon Sep 12, 2005 5:07 am

Hi Ladies,

I've posted this link before, but encourage you to read this recent research on DHEA and the results they're getting. Very early days, but sounds very promising so far, and amazing that this all started with a woman like any of us doing her own research.

http://www.centerforhumanreprod.com/pre ... aries.html

Cheers,

Jeni Babes · Post by **Jeni Babes** » Mon Sep 12, 2005 9:22 am

Tracker
how very very interesting!!!

Have printed off some of the info and will take it to my consultant when I next meet with him 14th Oct.

Thanks for that.

Love
jen
xxx

LucyC · Post by **LucyC** » Mon Sep 12, 2005 1:15 pm

Hi everyone!
My ovaries aged due to chemo, and now 34 yrs old have ovaries of a 40+.
My Fsh level has been a steady high for years and i am a poor producer (only producing 2-4 eggs each ivf cycle)
My consultant suggested we opted for donor eggs and after much thought did so.
My donor produced 11 eggs of which 8 fertilised but one of them over grew and split into too many cells too quick so we couldnt use that one. I had 2 transferred (with a negative result) but still have 5 frosties left!
The decision to go for donor eggs was a hard one, but we are glad we chose to as we feel it gives us a better chance of a positive result!

I know this isn't everyones best choice, but it gives people who think they will never get prg using their own eggs a new hope!

Jeni Babes · Post by **Jeni Babes** » Tue Sep 13, 2005 1:03 pm

Hey Lucy

thanks for that post. Made me smile at your positivity

. I will find out more about whether my tmt will be cancelled and whether a donor will be needed on the 14th oct. But you gave me hope.

One of the doc's I spoke to at the hosp said that it was nigh on impossible to get donors here. I don't really want to go to America, how did you manage to get a donor? any suggestions for me?

Good luck with all the frosties

Love
jen
xxx

Lee · Post by **Lee** » Tue Sep 13, 2005 7:44 pm

Hi

You all sound so positive! Feeling a bit better now after my weekend of thinking its all over now!! Can FSH levels be high for any other reason? Spoke to the fertility clinic and have to have another scan on ovaries and another blood test for levels before they will refer me to a clinic to see whether I am able to have IVF although it seems some of you have regular tests each month for FSH levels to see if you are able to go through an IVF cycle I got the impresion from the fertility clinic that if my results were poor it wouldnt be worth refering me? Have I got this right? So much going round my in head right now keep geting confused with all the info coming my way.

Good luck with the diets I am off to amazon to order the book right now!!

Love Lee

LucyC · Post by **LucyC** » Tue Sep 13, 2005 10:36 pm

Hi Jen,
Was going to use my sisters eggs as she offered(God bless her!), but when blood results came back we were not able to as she is CMV positive and i am CMV negative (CMV is a virus you could have had in the past which is like food poisoning or gastroenteritis so they tell me- its called something like 'cyclomeglovirus') and recipients who are negative cannot have donor eggs that are positive. So we went for a cross over donation which meant that she donated annonymously and I waited for the next CMV negative donor which took about 8-9 mnths.
I don't know if they do this at every clinic, and you need to bring your own donor forward and it costs around the same (give or take a couple of hundred!) as a full ivf cycle as well as your own drugs to prepare you for ET.
Apart from that you can always advertise for a donor in your local papers, GPs waiting room, local school news letters, and any mother and todler groups.
Hope this helps
Good luck in october!
Love Lucy

JaneR · Post by **JaneR** » Wed Sep 14, 2005 8:05 am

Hi Ladies,

Hope you are all well and staying postive and calm it helps with the FSH.

Lee, your FSH can flunctuate so many clinics test each month and wait to go ahead until the best month, I think if it is always as high then they may recommend not to go ahead. Have you had a look a Fertileheart.com that has a message board as well that details lots of things for high FSH it was put together by a eoman who an FSH of 42 and was told to forget ever getting pregnant and she got it down herself by changing her diet exercise etc. and she how helps other women with the same problem.

Lucy, which clinic were you at? 8-9 months is not long at all, did you have some frosties left?

Love,

Jane

LucyC · Post by **LucyC** » Wed Sep 14, 2005 8:54 am

Hi Jane,
Am under Calderdale in West Yorkshire but go to Leeds General for ET, was on the list at Leeds, I know their lists are long so impossible if you haven't got a donor to bring with you, i'm also fee paying.
Have got 5 frosties left and will probably wait until after christmas now for FET so i have time to get over my -IVE result that i got last week and give my body and bank balance a rest!
Love Lucy

JaneR · Post by **JaneR** » Wed Sep 14, 2005 9:40 am

Hi Lucy,

Did you advertise for your own donor as LGI told me they had a 2-3 year wait which put us off as I am 40. Any advice you can give me would be really appreciated.

Thanks,

Jane

LucyC · Post by **LucyC** » Wed Sep 14, 2005 10:17 am

Hi Jane,
No, Didn't advertise as with a fee paying cross-over means that I bring my donor forward and somebody else doing IVF brings their donor forward and then they use my donors eggs and i use their donors eggs ( providing that all blood tests match up).
Hope this helps
Are you using donor eggs?
Love Lucy

Jeni Babes · Post by **Jeni Babes** » Fri Sep 16, 2005 11:08 am

Hi all
Just to say I am away now on hols until 14th OCT...
keep with the healthy eating to lower those FSH levels...

Keep up the PMA....thinking of you ...

Love

Jen

xxx

JaneR · Post by **JaneR** » Fri Sep 16, 2005 11:56 am

Jeni,

Have a fab holiday.

Love,

Jane

High FSH/ Poor Responders

High FSH

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