hi again
If you've read my story, what do you think? Am I the first person this has happened too and if not, why don't they monitor us for this?
Caroline
Thread for responses to the water thread below cos it's long
Caroline ...... Oh my God ! What an utter nightmare you've been through. We all wondered where you were this past few days, and missed you 
What I can't understand is why your hospital didn't pick up that something serious was wrong, when you complained of vomitting. I had mild OHSS a couple of weeks ago and if my hospital asked me once, they asked me 20 times, if I was nauseous. It's one of the symptoms that things aren't going well, and together with other symptoms is a pointer towards the most serious extremes of OHSS - thrombosis, heart attacks and strokes. I think they should have had you in and monitored you at that stage, when you were throwing up and couldn't keep anything down. They would then perhaps have done routine tests, which may have picked up on the low sodium. Anxiety my foot !
Thank goodness you've come through to tell the tale. David must have been terrified.
I've never been told that it's possible to drink too much water ... however, funnily enough I was reading an internet site a couple of days ago where they warned to cut down on water intake in cases of severe OHSS.
I hope you're going to get plenty of rest, and take it easy for a while ?
Sandra x
What I can't understand is why your hospital didn't pick up that something serious was wrong, when you complained of vomitting. I had mild OHSS a couple of weeks ago and if my hospital asked me once, they asked me 20 times, if I was nauseous. It's one of the symptoms that things aren't going well, and together with other symptoms is a pointer towards the most serious extremes of OHSS - thrombosis, heart attacks and strokes. I think they should have had you in and monitored you at that stage, when you were throwing up and couldn't keep anything down. They would then perhaps have done routine tests, which may have picked up on the low sodium. Anxiety my foot !
Thank goodness you've come through to tell the tale. David must have been terrified.
I've never been told that it's possible to drink too much water ... however, funnily enough I was reading an internet site a couple of days ago where they warned to cut down on water intake in cases of severe OHSS.
I hope you're going to get plenty of rest, and take it easy for a while ?
Sandra x
Me 41 yrs old - dh 49 yrs old. ttc 110 yrs.
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
Oh my dear god....Caroline, how bloody awful it must have been. I did know you can drink too much, one of those teenage story things ie. you can feel drunk having only drunk water etc. Doesn't it make you appreciate living in a developed country with free medical facilities on hand, whenever you need them?
I'm sorry you missed your window but your body must need plenty of time and TLC right now. Poor David, sounds like he went through hell as well.
Take good care of yourself.
love
Debra.
I'm sorry you missed your window but your body must need plenty of time and TLC right now. Poor David, sounds like he went through hell as well.
Take good care of yourself.
love
Debra.
Caroline My god hunny what a terrifying thing to have to go thro
your clinic should most definitly should have picked up that something was wrong the minute you started being sick
i have never heard of this before but i guess it makes sense the fact that you can have to much water clinics should def keep an eye on sodium levels
i am so glad you have come thro this and are on the mend now your david must have been so scared for you
i am now going to cut my water intake to 4 litres a day i was on around 6
and im also going to go eat a packet of crisps just to be on the safe side
im sending you and david a great big cyber hug
{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}
look after yourself hunny lots of love Ang xxxx
your clinic should most definitly should have picked up that something was wrong the minute you started being sick
i have never heard of this before but i guess it makes sense the fact that you can have to much water clinics should def keep an eye on sodium levels
i am so glad you have come thro this and are on the mend now your david must have been so scared for you
i am now going to cut my water intake to 4 litres a day i was on around 6
and im also going to go eat a packet of crisps just to be on the safe side
im sending you and david a great big cyber hug
{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}
look after yourself hunny lots of love Ang xxxx
Our dream came true after 5 yrs ttc we know have 8month old twin boys Adam and Kieran and our gorgeous 9 yr old daughter.
Hang in there miracles really do happen
Hang in there miracles really do happen
Caroline, what a nightmare, I can't believe you had to go through that. I would have been terrified! When you were throwing up all the time your clinic should have done something! Anyone can get dehydrated very quickly. I can't believe they said you were just nervous! Also that estrogen level sounds way too high! That is prob why you were so sick. If I were you I would consult a lawyer. It's sounds like you were mis-managed all over the place! I'm so sorry that you had to go through that!
Me - 35 Unexplained DH 37
TTC#1 since '97
5 IUIs
1st IVF 5/04 - transferred 2-neg
2nd IVF 7/04 - transferred 3-pos but MC at 8 wks.
TTC#1 since '97
5 IUIs
1st IVF 5/04 - transferred 2-neg
2nd IVF 7/04 - transferred 3-pos but MC at 8 wks.
Caroline,
I am very sorry about what you have had to go through these past few weeks. However, I think you are are very brave to come through such a horrid experience, but not only that I think you are extremely selfless to write your story in your head while laying in the hospital, just to make sure you warn others of the possible dangers.
Since I have been reading this message board (long before I actually posted). I have came in contact with many women with extrodinary stories of heartbreak, suffering, but also joy. Thank you Caroline for sharing your story, and thank you to all the women who post their personal stories. I have found this board very helpful, and a major support systems while dealing with this terrible thing they call infertility.
I can end this, Caroline, by telling you a bunch of "your clinic should have..." but you know best about that situation. I will end with some information that my RE gave me when I was at risk for OHSS, so maybe this message will get out to other people.
There is a HUGE push to drink water on this board, and drinking water is GOOD, but you must be smart about it. Normal daily intake of water should be 8 8 0z glasses (those of you across the pond will have to do the conversions yourself. I am mathphobic
). My RE suggested that I do not exceed 10-12 8 oz glasses a day and told me, "Drinking too much water could be just as bad"! My RE said the best thing to do is to watch my salt intake, but again he said there was no need to limit salt all together just limitfoods with high salt content like ham and potato chips.
I think many of us get somewhat obsessed when we are going through IVF, and we think the more we do is better. At least drinking tons of water or limiting salt all together makes us "feel" like we are doing something postitve, but we all need to remain smart, and not fall in that horrid IVF trap. I can say this now because I am between cycles, but if anyone remembers my post during my 2WW I was anything but sane and right down obsessive.
I have went on way too long. Caroline, again I am so sorry for your expereince, but thank you so much for sharing. Please take care of yourself and David. We can not give enough credit to all the supportive husbands and partners out their. I could never go through treatment with out my Chris!
Ladies, please take care of yourself during IVF, and if you are vomiting...demand test!!
Mia
I am very sorry about what you have had to go through these past few weeks. However, I think you are are very brave to come through such a horrid experience, but not only that I think you are extremely selfless to write your story in your head while laying in the hospital, just to make sure you warn others of the possible dangers.
Since I have been reading this message board (long before I actually posted). I have came in contact with many women with extrodinary stories of heartbreak, suffering, but also joy. Thank you Caroline for sharing your story, and thank you to all the women who post their personal stories. I have found this board very helpful, and a major support systems while dealing with this terrible thing they call infertility.
I can end this, Caroline, by telling you a bunch of "your clinic should have..." but you know best about that situation. I will end with some information that my RE gave me when I was at risk for OHSS, so maybe this message will get out to other people.
There is a HUGE push to drink water on this board, and drinking water is GOOD, but you must be smart about it. Normal daily intake of water should be 8 8 0z glasses (those of you across the pond will have to do the conversions yourself. I am mathphobic
). My RE suggested that I do not exceed 10-12 8 oz glasses a day and told me, "Drinking too much water could be just as bad"! My RE said the best thing to do is to watch my salt intake, but again he said there was no need to limit salt all together just limitfoods with high salt content like ham and potato chips.I think many of us get somewhat obsessed when we are going through IVF, and we think the more we do is better. At least drinking tons of water or limiting salt all together makes us "feel" like we are doing something postitve, but we all need to remain smart, and not fall in that horrid IVF trap. I can say this now because I am between cycles, but if anyone remembers my post during my 2WW I was anything but sane and right down obsessive.
I have went on way too long. Caroline, again I am so sorry for your expereince, but thank you so much for sharing. Please take care of yourself and David. We can not give enough credit to all the supportive husbands and partners out their. I could never go through treatment with out my Chris!
Ladies, please take care of yourself during IVF, and if you are vomiting...demand test!!
Mia
i am so sorry thast you have had to go threw this..
when i was pregnant i was told to drink 64 ounces of water.
it is wonderful that you have shared your story. thank youso much.
i am glad that you made it threw.
becky
when i was pregnant i was told to drink 64 ounces of water.
it is wonderful that you have shared your story. thank youso much.
i am glad that you made it threw.
becky
we werent blessed with our babies to raise here but we our blessed with our grandaughter
and all of our many adopted and foster children that touch our lives
and i am glad to add that our 6th grandchild will be born this spring!!!!
and all of our many adopted and foster children that touch our lives
and i am glad to add that our 6th grandchild will be born this spring!!!!
Oh my goodness, Caroline! I can't believe what you've been through. Have been wondering how you were as haven't seen any posts from you recently and if I hadn't by tomorrow, was going to send out a cyber search!
You poor, poor girl.
So glad you've come out of it, could really have been touch and go by the sounds of it. I hope you and David are ok, though of course it's going to take a while to come to terms with. Didn't expect to hear anything like that. What a terrible experience. You did seem to be drinking a lot of water but, as you say, that's supposed to be a good thing and you made me wonder if I wasn't drinking enough! We do as we're advised (or try to) and don't know any different do we.
What must have made it worse is the clinic not being more concerned about your symptoms. Maybe they have not known this to happen before, but surely they should have checked you out or at least seem to be taking your symptoms more seriously. If a nurse or doctor is on the brusque side then it's natural for you to feel like you're being silly or it's anxiety and it's such a shame you were made to feel like that. I am sure you or David have informed the clinic. Any responses from them?
IVF itself is hard, plus all the travelling you did and now this. I really feel for you and hope you can get over this eventually. The clinic will surely give some sort of compensation in treatment, counselling and support? Please let us know how it goes and how you are coping. You don't have to make any decisions about anything now - just get yourself well and do all you can to make yourself feel happier. Everything else can wait until you feel up to it.
Sending you lots of hugs and real heartfelt support,
love Jeanie xxxxx
You poor, poor girl.
So glad you've come out of it, could really have been touch and go by the sounds of it. I hope you and David are ok, though of course it's going to take a while to come to terms with. Didn't expect to hear anything like that. What a terrible experience. You did seem to be drinking a lot of water but, as you say, that's supposed to be a good thing and you made me wonder if I wasn't drinking enough! We do as we're advised (or try to) and don't know any different do we.What must have made it worse is the clinic not being more concerned about your symptoms. Maybe they have not known this to happen before, but surely they should have checked you out or at least seem to be taking your symptoms more seriously. If a nurse or doctor is on the brusque side then it's natural for you to feel like you're being silly or it's anxiety and it's such a shame you were made to feel like that. I am sure you or David have informed the clinic. Any responses from them?
IVF itself is hard, plus all the travelling you did and now this. I really feel for you and hope you can get over this eventually. The clinic will surely give some sort of compensation in treatment, counselling and support? Please let us know how it goes and how you are coping. You don't have to make any decisions about anything now - just get yourself well and do all you can to make yourself feel happier. Everything else can wait until you feel up to it.
Sending you lots of hugs and real heartfelt support,
love Jeanie xxxxx
Caroline,
We were a little concerned we had not heard from you, but never could have guessed at what you were going through. I am so sorry to hear about what happened and it makes my blood boil to read about how your obviously severe symptoms were dismissed as anxiety.
Thank goodness you are alive. I often forget how this IVF thing, although exciting for those of us who cannot have children any other way, can be playing with fire. All these medications are no joke. And I sometimes feel that so little is known about it, even at the best clinics because it really is still relatively new.
I think you so much for writing your story. It really could save somebody's life on here. I hope you recover fully and well. Both physically and emotionally.
I remember the day I tearfully told DH that I had found out that I was the reason we had been unable to conceive for 2 years. And I had acted so badly during that time, too. He was worried I was going to say I had found out I had cancer or something. To him, it would be nice to have a baby, but he couldn't bear it if anything happened to me. I bet David is having similar thoughts.
We're here whatever you decide to do.
Alicia
We were a little concerned we had not heard from you, but never could have guessed at what you were going through. I am so sorry to hear about what happened and it makes my blood boil to read about how your obviously severe symptoms were dismissed as anxiety.
Thank goodness you are alive. I often forget how this IVF thing, although exciting for those of us who cannot have children any other way, can be playing with fire. All these medications are no joke. And I sometimes feel that so little is known about it, even at the best clinics because it really is still relatively new.
I think you so much for writing your story. It really could save somebody's life on here. I hope you recover fully and well. Both physically and emotionally.
I remember the day I tearfully told DH that I had found out that I was the reason we had been unable to conceive for 2 years. And I had acted so badly during that time, too. He was worried I was going to say I had found out I had cancer or something. To him, it would be nice to have a baby, but he couldn't bear it if anything happened to me. I bet David is having similar thoughts.
We're here whatever you decide to do.
Alicia
TTC 2.5 years - Me 38 no tubes; DH 32
1st- IVF June 2004 - early MC
2nd - FET Aug 2004 - Twin boys born April 25, 2005!!!
1st- IVF June 2004 - early MC
2nd - FET Aug 2004 - Twin boys born April 25, 2005!!!
Caroline and David
Big hug, I too had wondered where your posts were. I was shocked and couldn't believe the horror of what you have been through. I echo the words of everyones previous messages. Do take care
Chubbs
Big hug, I too had wondered where your posts were. I was shocked and couldn't believe the horror of what you have been through. I echo the words of everyones previous messages. Do take care
Chubbs
Me 39 DH 34
Dec 2003 1st IVF/ ICSI - poor response 1 embi - neg. FSH up post cycle
April 2004 2nd IVF / ICSI - 2 embis - neg
August 2004 - 3rd attempt : 1 embi, testing 2/9/04
Dec 2003 1st IVF/ ICSI - poor response 1 embi - neg. FSH up post cycle
April 2004 2nd IVF / ICSI - 2 embis - neg
August 2004 - 3rd attempt : 1 embi, testing 2/9/04
Caroline,
I can't believe what you've been through and I'm just happy you are okay.
I know there is a condition called hyponatraemia which result from drinking too much water. It happens most frequently in long distance runners who overdo it on the water but can certainly happen to anyone. Last year, the girls in DH's office were having a contest each day to see who could drink the most water (they thought it would help their weight loss efforts). I had him bring in an article about the dangers of water intoxication and that brought the contest to a quick end. Most people think it's great to drink as much water as possible but, as with just about everything, you can get too much of a good thing. Is it possible that the condition you had was solely the result of drinking too much water? Perhaps it didn't even have anything to do with the herbs or the IVF drugs. If you look up some articles on hyponatraemia on the internet, perhaps you can see if it resembles what happened to you.
At any rate, I'm so glad you're okay. Don't even worry about your next step in all of this just yet. You've just had a very scary experience and I can see where you wouldn't be ready to jump right back into things anytime soon.
Take care!
Staci
I can't believe what you've been through and I'm just happy you are okay.
I know there is a condition called hyponatraemia which result from drinking too much water. It happens most frequently in long distance runners who overdo it on the water but can certainly happen to anyone. Last year, the girls in DH's office were having a contest each day to see who could drink the most water (they thought it would help their weight loss efforts). I had him bring in an article about the dangers of water intoxication and that brought the contest to a quick end. Most people think it's great to drink as much water as possible but, as with just about everything, you can get too much of a good thing. Is it possible that the condition you had was solely the result of drinking too much water? Perhaps it didn't even have anything to do with the herbs or the IVF drugs. If you look up some articles on hyponatraemia on the internet, perhaps you can see if it resembles what happened to you.
At any rate, I'm so glad you're okay. Don't even worry about your next step in all of this just yet. You've just had a very scary experience and I can see where you wouldn't be ready to jump right back into things anytime soon.
Take care!
Staci
Me 35/DH 41
TTC 4 years
Diagnosis: MF infertility
IVF/ICSI April 2004: -tive
FET Aug. 2004 (canceled due to cysts)
FET Jan 2005: -tive
FET Aug. 2005
TTC 4 years
Diagnosis: MF infertility
IVF/ICSI April 2004: -tive
FET Aug. 2004 (canceled due to cysts)
FET Jan 2005: -tive
FET Aug. 2005
Staci
hyponatraemia is exactly what happened to me. In normal circumstances it would be happen to probably the majority of people if they drank 6 litres of water a day but IVF is not normal circumstances and most people's bodies need the water. For some reason, mine didn't. Could have been the Chinese herbs, could have been something odd about a me or a combination of everything. I am never going to know, but I was incredibly unlucky. I also had the best hospital care I could possibly have wished for, without paying, on our glorious National Health Service, against which I won't hear a word of criticism anymore. They supported David fanstastically and let him be an integral part of my care team while I was in Intensive Care and so in some ways I was also very lucky. I feel very glad to be alive.
Thanks for all your support and good wishes
Caroline
hyponatraemia is exactly what happened to me. In normal circumstances it would be happen to probably the majority of people if they drank 6 litres of water a day but IVF is not normal circumstances and most people's bodies need the water. For some reason, mine didn't. Could have been the Chinese herbs, could have been something odd about a me or a combination of everything. I am never going to know, but I was incredibly unlucky. I also had the best hospital care I could possibly have wished for, without paying, on our glorious National Health Service, against which I won't hear a word of criticism anymore. They supported David fanstastically and let him be an integral part of my care team while I was in Intensive Care and so in some ways I was also very lucky. I feel very glad to be alive.
Thanks for all your support and good wishes
Caroline
-
TanyaVincent-Tomlinson
- Member
- Posts: 71
- Joined: Thu May 13, 2004 9:34 am
- Location: Frankfurt, Germany
Caroline
Firstly thanks so much for sharing your harrowing experience - food for thought for us all.
I would be interested to know what the ARGC's reaction to this is? I tried to go for a tmt cycle with them last year as the statistics said they were the best and like you age was against me so was prepared to put up with the travelling (live in Somerset). My FSH levels did not meet their criteria for them they need to be 10 or lower, out of 3 tests I did manage an 8.something but another hormone level was too high.
We then gave up for a while and then went for a tmt cycle in Bristol where my FSH was 6.something, 8. something and 9 - the tmt was inititally positive but I suffered an early m/c.
Interestingly enough during one of my scans at the ARGC, on day 2 or 3 I mentioned about heavy bleeding which they assured me was due to this high hormone, at the Bristol clinic they noticed I had a polyp in my womb, which was the cause of the heavy bleeding each month (they arranged for its removal).
During all my visits to the ARGC I found them very dismissive and really not bothered with any questions you had, almost as if they couldn't be bothered to spend the time with you, I think forgetting that for most of the people there this is the most important thing in their lives, for them its just a job, and yes I am sure they get asked the same questions a 100 times but that is the nature of the beast.
I would like to think that after some time to recover you will feel strong enough emotionally to try again, at least you know you react well which in older ladies can be a problem, you know through your own dreadful experience what not to do with regards to water. But you are still here and no matter what that is the most important thing.
The HEFA spends a lot of time worrying about the embryo's I think its about time they started to take some time looking into cases like yours, where the outcome could have so easily been so different.
Take care of yourself
DeeDee
Firstly thanks so much for sharing your harrowing experience - food for thought for us all.
I would be interested to know what the ARGC's reaction to this is? I tried to go for a tmt cycle with them last year as the statistics said they were the best and like you age was against me so was prepared to put up with the travelling (live in Somerset). My FSH levels did not meet their criteria for them they need to be 10 or lower, out of 3 tests I did manage an 8.something but another hormone level was too high.
We then gave up for a while and then went for a tmt cycle in Bristol where my FSH was 6.something, 8. something and 9 - the tmt was inititally positive but I suffered an early m/c.
Interestingly enough during one of my scans at the ARGC, on day 2 or 3 I mentioned about heavy bleeding which they assured me was due to this high hormone, at the Bristol clinic they noticed I had a polyp in my womb, which was the cause of the heavy bleeding each month (they arranged for its removal).
During all my visits to the ARGC I found them very dismissive and really not bothered with any questions you had, almost as if they couldn't be bothered to spend the time with you, I think forgetting that for most of the people there this is the most important thing in their lives, for them its just a job, and yes I am sure they get asked the same questions a 100 times but that is the nature of the beast.
I would like to think that after some time to recover you will feel strong enough emotionally to try again, at least you know you react well which in older ladies can be a problem, you know through your own dreadful experience what not to do with regards to water. But you are still here and no matter what that is the most important thing.
The HEFA spends a lot of time worrying about the embryo's I think its about time they started to take some time looking into cases like yours, where the outcome could have so easily been so different.
Take care of yourself
DeeDee