Should I complain?

Discussion group for all topics related to infertility including preparation for pregnancy, causes, investigation and treatment of infertility.
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Thistle
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Posts: 35
Joined: Thu Jan 13, 2005 12:18 pm
Location: Devon, England

Should I complain?

Post by Thistle »

Hello all.

I haven't been able to look at the website since my last (4th) att failed so dramatically. But now I have got to know what you guys think.....

Everything was going so well until I went in to have my EC and apparently got an infection. I was on steriods to try to suppress my immune system so I suppose my body wasn't strong enough to fight. Which when I think about it, is exactly what I wanted, not to be strong enough to fight the embyro. I only got 3 embies so they picked two and put them in as they were going to perish if they didn't. What chance did they have, it felt like a joke.

I spent a week in hospital on very strong anti-biotics, where my body really tried to fight, with blood counts going up and down! I lost 1½ stone in a week as I couldn't keep anything down. Once at home AF arrived a week later.

After spending the past six months concentrating on me, getting my weight right, eating right, relaxing right, not working etc. it really hurts that I have been very poorly and feel I have lost a really good chance at a BFP.

I have an appointment next monday 4th of July to talk about it. Should I complain? I just can't help thinking that £3,500 is such alot of money per cylce that they should be answerable for their actions, like any other business. I didn't get the infection from anywhere else.

I would love to hear if any-one else has had similar problems or just what you would do.

Thanks thistle x x x
Me 34 DH 33
9 yrs ttcc
4 -ivf cycles
Hysterectomy
Nothing
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Susie
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Posts: 351
Joined: Sun Jan 30, 2005 8:33 pm
Location: Lancashire

Post by Susie »

At my clinic we are automatically given anti-biotics that we take straight after EC, because there is a high risk of infection. The anti-biotics are taken as a precaution whether or not you have got the infection.
If you were not given these I would defineately complain, but if you were then I think they have done all they can.
HTH
Me 37, DH 53 Male & female factor
1st ICSI +ve, a daughter born 2001
2nd ICSI +ve, a son born 2006
Ellie
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Posts: 277
Joined: Tue Mar 09, 2004 2:16 pm

Post by Ellie »

Thistle
I hope you are feeling a bit better now and sorry you had to go through so much.
I had a similar problem a few years ago only mine went undiagnosed for 2 months. I do feel my clinic let me down a bit not recognising the problem. I kept being admitted into hospital and discharging myself because they kept telling me they didn't know what was wrong. In the end I was 12 hours away from being in intensive care with septicaemia. Once I got the IV antibiotics it sorted out the infection. I then had 2 major operations and nearly ended up with a hysterectomy. It was 6 months before I could go back to work . For a further year I still had little flare ups. However I did recover and go on the have twins.
We stayed with the same clinic and didn't complain I just took it to be one of the risks of IVF. I did have extra antibiotics on the next attempt and was really nervous of the same thing happening again.

I hope you manage to come to terms with what happened and move on.
Take care
Ellie
ogr1
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Joined: Fri Aug 29, 2003 7:11 pm

Post by ogr1 »

if this is your only clinic i would think carefuly about how i would say what needed to be said.. we do pay them alot of money and ivf does take so much out of us..
but they are all only human to..
everytime we did ours we got put on antis before we did ecand et
and same when we did fet. dh was on antis to 10 days before..

this is very sad that this has happenend to you.

i would go in and ask them what can be done so it wont happen again.

what strong antis that you can take before hand..
and that you cant go threw this heartache again.

if you dont like the fealling that you are getting back from them then i would get alot more stern..

good luck and let us know how it goes..

we are all here for yuo.. :)
we werent blessed with our babies to raise here but we our blessed with our grandaughter
and all of our many adopted and foster children that touch our lives
and i am glad to add that our 6th grandchild will be born this spring!!!!
lumi
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Joined: Tue Mar 08, 2005 6:46 pm
Location: London, UK

Post by lumi »

Thistle
What a nightmare - hope you are feeling on the up sweetie. A -ve makes us mentally 'down' but combined with physical illness must be terrible
.

Lumi xxxx
me 31 DH 33
3rd FET...BFP...TWIN GIRLS!!!
[img]http://tickers.TickerFactory.com/ezt/d/1;21;34/st/20070119/dt/5/k/e204/preg.png[/img]
Sand
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Posts: 3364
Joined: Sun Mar 14, 2004 11:35 am
Location: Lancs, England

Post by Sand »

Thistle .... So sorry you've had a nightmare time recently.

At my hospital, I've had to almost sign my life away before EC ... so they weren't culprable if anything went wrong ... You are entitled to complain of course, but I'm afraid I'm not sure if it will get you very far.

Sandra x
Me 41 yrs old - dh 49 yrs old. ttc 110 yrs.
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
cmg
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Joined: Thu Apr 15, 2004 2:28 pm

Post by cmg »

Thistle,

Sorry you've been through such a terrible time. I hope you're on the road to recovery.

I had a bad experience last year and have some experience of complaining, which I don't want to go into publicly. I'll send you a PM but it may not be for a few days as DH is dragging me off the pc as I've got EC tomorrow and I need to relax. Promise I'll get back to you on it though, but bear with me.

Caroline
me - 44, DH - 48

2002 ectopic (natural conception)
2004 1st IVF cancelled following brain seizure
2005 June/July 2nd IVF - negative
2005 Nov FET - postponed cos my Mum died
2006 - Feb FET planned, but neither frostie survived the thaw.
cmg
Regular
Posts: 336
Joined: Thu Apr 15, 2004 2:28 pm

Post by cmg »

Thistle

I've been trying to send you a PM but, although it says it's been sent, it's sitting in my outbox, not my sent box. So either you have about 15 copies of it by now, with a slight alteration after the first one cos I assumed it had been sent last night and then edited it this morning when I found it hadn't gone, or you haven't got it at all. Can you let me know if it's arrived?

hope you're bearing up

Caroline
me - 44, DH - 48

2002 ectopic (natural conception)
2004 1st IVF cancelled following brain seizure
2005 June/July 2nd IVF - negative
2005 Nov FET - postponed cos my Mum died
2006 - Feb FET planned, but neither frostie survived the thaw.
Thistle
Member
Posts: 35
Joined: Thu Jan 13, 2005 12:18 pm
Location: Devon, England

Post by Thistle »

Yes I have got your reply and thank you for being so detailed. It is so hard to get my head round just what us girls are willing to put ourselves through. :shock:

I keep swinging from never being able to do this again, to wanting to because I think about the future if I don't. My af's are so bad each month I can't hold down a full time job so I have been told to seriously think about a hysterctomy and be menopausal again at 33. At 25 they wouldn't do it (even though I begged them) as they said I didn't have a family and now here I am 8 years later still with no family.

I have thought about the complaining bit and read all your thoughts and I still can't decide what to do. In hospital I just wanted to be well and now at home I just want to be a mum.

And please don't say the adoption word (it makes me feel sick. As once that is my only choice then I will have given up.

Love thistle
Me 34 DH 33
9 yrs ttcc
4 -ivf cycles
Hysterectomy
Nothing
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