unsociable

[indiana]

Evening girls
Sorry its so late.
It wasnt good news, for my health or tmt success.
I have to go back 6 yrs to explain so bear with me.
I had all the usual test, lap, Hsg, scans and bloods in 1998, was told both my tubes were totally bloked and i would need ivf and lots of money (no funding in cornwall untill 05).
We had satalite ivf at Bodmin/Sheffield in nov 99 but only had 5 eggs and only 1 fertalized but still -ve result.
We changed clinic to Exeter in 2000 where i was told that as well as blocked tubes i had a hydrosalphinx on 1 tube and that was the most probable reason the first ivf didnt work.
I was then told to have that tube removed and the other opened, which they did, but 2 days after i left hospital i was back in with a post op infection. Its more than likely this closed the remaining tube.
I was then going to egg share on my next ivf to fund my own cycle so the usual blood test were done.
My Hep C test came back and they said i didnt have Hep C just an antibody and my own health would not be affected and i couldnt pass this on but couldnt egg share, so that was that, there was no way at that time that i could have payed for tmt.
Five years latter we get turned down for adoption and end up back on the ivf trail.

We get to the appointment today and meet a fantastic doc! all good you would think.
He then asks me what my Hep C status is now, i look at him gone out and ask what he means.
Apparently everything that Exeter told me is rubbish and i should have been seeing a liver specialist since 2000, i could have passed this on to DH and the only place could have got it is while having the tube out. Oh yes the vital bit, I CANT HAVE TMT unless i go to a specialist clinic in bloody london ( nothing wrong with london just far way).


I cant believe how 1 clinic let me have ivf with hydrosalphinx knowing it wouldnt work, and the 2nd clinic told me not to worry about a viral infection that can cause liver failier!!!!!
Its no bloody wonder im depressed and have panic attacks when the people we trust (doctors) do that to me.

Sorry im not very cheerful but i dont think i could feel worst if i tried.


Terri So glad you had good news, Ive heard herbal meds can do a lot for pcos.


Hello Clair

[clair55]

Hi Indiana

I can't believe it!!!!!!! I am not suprised you are angry. You must complain to your local PCT about the clinic as they have been grossly negligent regarding your Hep C status especially if you contracted it there. I also have a hydrosalphinx and am now wondering if this why my first cycle failed and i will be furious if it is. The only "good" thing if you can call it that is that you now will get treatment for the Hep C. Thank god someone had the sense to pick up on it now and not 10 years down the line when you became ill. This is just all you need!!!! I wish there was something I could do for you but I know i can't except listen/read. You take care of yourself.xxx

Hi Terri
Hope you a feeling better today. Take it easy.xxx

Hello to other ladies. Yorkie how are you doing today.

love
clairxxx

[indiana]

Thanks for being there clair,

It was DH's day off today so we went on a retail therepy session.
silly thing is we only bought stuff for the animals!
Oh and a pair of wellies, its amazing how many pairs you go through.
as you can see im trying to distract myself with boring everyday tasks.
If i think, i think i will lose the plot.
Friends and family keep leaving messages asking how we did but i dont want to think about it never mind explain it all.


Hope everyone else is doing better
Terri hows the pain, gone i hope.

Indi.xx

[Terri2]

Hello Indiana and Clair

So sorry to hear your news Indiana. They have totally messed you about, like Clair said, you should take this further. Its terrible the false information they have given you.
Hope you are okay. I find if I keep busy it really does help.

I'm feeling better thank you for asking when you are so stressed yourself.
the pain has gone!

[Terri2]

Yorkie, how are you feeling today?

[indiana]

Feeling really crap tonight.

my head is in bits, Ive been trying to find some info on hep c but its just making me feel 100 times worse.
If i tested negative in 99 but then positive in 2000, there are only 2 places i could have got it. From DH the same year we got married or from the hospital while having my tube out. My DH is just not like that but at the same time i cant believe i got it in hospital.
Then there is the question of do i risk going ahead with the ICSI and maybe passing it on to our child and even if i dont, my liver could be damaged so i would die younger leaving a chld with no mum.
All this makes me feel like i am having a child for my own sake and not putting the childs future first.

Sorry to be so bloody miserable, just needed to get it all out.

Indi

[Smita]

Indi,
I'm so sorry to hear abt the mess up happening in your life right now..
Hospitals can screw up you know..I had a lap in 2000 and my tubes were ok, and after that kept trying.. in 2004 Nov, my tubes were gone..with a hydrosalpinx on both sides..No one knows how it could have happened in the interim, but my current doc feels that it could have happened after the lapro- as in I could have caught an infection inside.. I still kind of blame my prev doc for the mess..
Please don't think of negative things(hard not to, but still) why don't you go full blast and get the hep C sorted out first, so you can be relieved.. And abt passing it on to your kid, in ICSI, there are ways to find out if the gene carries it- I think its called some pre implantation genetic testing or soemthing and the docs wont transfer any embie carrying a risk..
Take care will ya..

Terri,
It must be a relief to know your tubes are fine- I was in the most awfulpain for abt a week after my HSG- that was cause my tubes were blocked and they tried to see if they could clearthem by forcing the dye thru..and the nurse kept yelling at me not to scream..
PCOS is easy to treat, so now you can be on track- one small thing abt clomid- I was told that in some cases clomid increases the formation of cysts- don't want to psyche you and I' sure your docs know best, but could you just check with them once more to clarify that the clomid won't produce more cysts instead of eggs??

Clair and Yorkie,
How're you doing? Hang in there ladies..

smita

[indiana]

Hello peeps,


Im even more confused today.

Ive been searching for info on hep c allday, i eventually found a british website hepcuk. an official site and it says on there that you can get rid of it
Ive been and registered with our new GP but ive got to wait till next wed for another blood test and then wait for results, so i suppose it will be a few weeks till i know if ive defo got it.
I also found the ivf clinic in london that treats couples with hep b or c.
It the Chelsea and Westminster.
Has any one been here?
They are sending me there info pack.
I felt really bad this morning but i think a little bit of PMA is creeping back in.
Hope all you ace girlies doing just fine.

love Indiana.xxxxx

[clair55]

Hi indiana

Hep c is becoming more and more common and people are unaware they have it. You can't rule out that you did contract it from the hospital these things can happen. The best advice i can give to you is to get in contact with either your local Genito unrinary clinic/ Infectious disease clinic. DON'T BE SCARED OFF WHAT THEY ARE CALLED!!!!! They just happen to pick up on HEP C more with people by accident because they test for everything. My reasoning is that they have nurses who are trained in conditions like this who will be able to explain everything to you while you are waiting for your referal. From what i know you can have the anti body which could mean you have been exposed at some point but your body as natually fought it off and that Hep C is quite easily treatablewith no lasting effects if caught in time. Maybe you should sort this out before next treatment and try to find out if this has possibily affected past failed attempts. Good Luck lovexxxx

[Terri2]

Smita, thanks for that advice, I will do some reading tonight on the net.

Indiana, glad you are feeling more positive. There is an answer for most things I think, so I'm sure you will find a way to deal with this and keep trying. If you could get to speak to someone at one of these clinics, that might help.

[Terri2]

I'm feeling really let down by my friend at the moment. She's the one who has been trying for 3 years and just got pregnant about 6 weeks ago. We used to see each other almost every day. She goes past my house on her way home every day she often dropped in before she went home. We used to say we did not know how we would cope without each other as we were both going through the same thing. She knows how down I have been and even asked me if I wanted her to stop coming round so often. I said no thats the last thing I wanted and that I wanted to be part of her good news and her pregnancy as it would feel worse to be excluded. That was about a month ago. Since then I have hardly seen or heard from her. This is someone I spent most of my time with, we would drop everything to be there if one or the other was having a bad day. We would cry together every month when AF came.
She's been busy with relatives lately but that never stopped her calling, dropping in before. plus the relies left a week ago.
Then this week was the icing on the cake. She knew my hycosy was on Wednesday and she didn't even call or text to ask how I was or find out the results. EVERYONE else either emailed, text or phoned me to check I was okay, even the people I work with. She just called me now (saturday) and talked for about 10 mins before saying how was wednesday, said she didn't like to call before to ask.......wanted to give me some time. I didn't tell her much as I couldn't be bothered by then. I felt like not telling her anything. NOrmally she would have been the first person there, checking on me. Then she said her husband is really moody at the moment as the house has been so untidy with them having visitors there. I couldn't help it by this point, I said "tell him something from me, tell him to put things into perspective. He's just got his dream and he's complaining about an untidy house, are you kidding? tell him how lucky he is. We are still waiting for this to happen and if it did, the last thing on our minds would be an untidy house!"
Just feeling very hurt at the moment. I never expected this to happen. part of me wants to tell her how I feel but the other part doesn't want her to make more effort just cos I told her how I feel.
Has anyone else experienced anything like this. I'm lucky I have other people but I'm stunned that she's not there for my anymore. She above everyone else is the one who is supposed to know how this all feels.

[clair55]

Hi Terri

I'm sorry your friend is being like this. As i've said on this thread earlier a similar thing as happened to my friend who's daughter was born in April. I've had a few texts but she really doesn't know what to say. I was a bit upset at first but now i'm ok about it. Some people can cope with difficult situations , some can't. I remember my friend telling me when she first got pregnant that she felt a bit guilty because of all the stuff we were going through. I was mortified that she felt like that. Perhaps your friend thinks she is helping by keeping her distance. Why don't you ask to speak to her and sort it out. Otherwise the situation is just going to get worse and worse. I hope you can sort it out. Hope you are feeling better today. Did you get hold of anyone at the clinic? Take care hon.xxxx

Hi Indiana Hope you are feeling abit better today. Say hello to the cows for me.xxxxxx

Hi yorkie

How are you? Am thinking of you.xxxxx

Hi smita

Hope things are going well. Take care of yourself and your little bundle of joy.xxxxx

I have a rotten cold and AF came yesterday. I started bleeding two weeks ago right in the middle of my cycle but yesterday AF came good and proper. Suppose it's my body going back to normal after all those hormones. Anyway feel and look like crap so am off to bed for a couple of hours with a beechams powder.

bye bye for now ladies
clairx

[Terri2]

thanks Clair
Hope you are feeling better. Get lots of rest and drink lots!

I think you are right, I should talk to her, I was thinking the same myself as the day went on. We've been friends for so long I do want to sort it out. She seems to be feeling very sorry for herself with the nausea and I guess she knows I'm not going to be really sympathetic about that! I swear I will not feel sorry for myself WHEN I get pregnant. I will enjoy the morning sickness and I told my DH he can hold me to that.
The thing that hurts most is she didn't even check on me after the test I had.

Tried the clinic this morning, both lines engaged. The bleeding has stopped so I've calmed down a bit!

[KTF]

Hi Girls,
Not been around for a few days because I have had a couple of days holiday from work Had some much needed retail therapy!

Terri – really pleased to hear your news on the results of your HyCoSy, at least the tubes are working well, and like others have said think there is lots you can do about PCOS. Sorry it was so painful though! Sorry you are having problems with your friend too. Maybe she is not coping well with the change from ttc to eventually being pregnant, they do say that is it very difficult to actually believe and you will prob stress far worse than someone who has conceived easily. Even so, it is a shame that she feels the need to keep her distance, like the others suggest I would give her a call and see if you can sort it out.

Indiana – how you doing? Glad to hear that some PMA has creeped in – keep that up! Sounds like you are researching as much as you can. It is shocking how negligent the clinic have been with you though!

Smita – thanks for keep checking in on us unsociable lot! Like you said in an earlier post, I think we are all feeling a lot more social now. How are things going with you and your little bump?

Clair – how you keeping? Looks like you been giving out loads of advice to the girls and supporting us loads.

KTx

[Terri2]

How's everyone doing today?

Even though DH is away I am checking still to see when I ovulate especially as not taking clomid this month. I seem to have an LH surge already which is really good without clomid. I wonder if the acupuncture or chinese medicine has helped, I don't know.
I am tempted not to take clomid and see what happens naturally but I just don't know!

I asked my friend to come round for a chat last night. She said she wasn't feeling well so she couldn't. I thought maybe she'd contact me today but she hasn't. SO I have emailed her at work,she should get it in the morning. I haven't rambled too much but have told her how hurt I am feeling by all of this. I just don't know what to expect though.