High FSH/ Poor Responders

Discussion group for all topics related to infertility including preparation for pregnancy, causes, investigation and treatment of infertility.
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Ellie
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Posts: 277
Joined: Tue Mar 09, 2004 2:16 pm

Post by Ellie »

hi Everyone
Hope you are all keeping up the health eating and PMA.
I have just come back from a weeks holiday and had a lovely time. I have however not been able to have accupuncture for 2 weeks and eating the Zita way was pretty much impossible while away. Yesterday I had another blood test and my Fhs is still high at 12.3 but slightly down from last month!
I am begining to lose heart with all this as I feel whatever I do does not help. I can't see my levels ever coming down and getting the chance to have another go.
When do I give up and move on? my levels have been high for 5 months how much longer should we give it? I know know one can answer this but anyone who has any wise words would be well received.

Jane you said accupuncture raised your FSH did it come down at all or did you stop with the treatment?

Sorry to post in such a negative fashion but I am feeling rather disillusioned with the world today.
Ellie
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Smita
Valued Contributor
Posts: 2817
Joined: Sat Jun 04, 2005 2:53 am
Location: From India,living in Abu Dhabi

Post by Smita »

Ellie,
I hope you come out of the blues soon..
FSH does vary a lot for a lot of us.. mine was 11 and 15 in september to december last year and it came down to 8.3 in feb/march, so if you say your level has reduced,
I think you're on the right track- just keep working on it and keep up positive thinking and you'll be there..

Good Luck everyone!
PMA only! :D

smita
me-32, dh 40
ttc 4+ years
4 failed IUI's
1st ICSI +ve 17/6/05:)
Baby girl Dhruvaa born on 14/02/06
[img]http://tickers.TickerFactory.com/ezt/d/2;53;30/st/20060214/n/Dhruvaa/dt/8/k/07ce/age.png[/img]
JaneR
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Posts: 151
Joined: Mon Mar 01, 2004 3:58 pm
Location: Yorkshire

Post by JaneR »

Hi Ellie,

My FSH has come down this month 10 11 and my hospital have said to go ahead with treatment. They don't think it will come down much more plus we know how I'm going to respond anyway so even if it was lower it wouldn't make much difference i only produce 6-7 follies each time.

This time I am trying something completely different, injecting stims in my stomache and taking them at night so they can work whilst I'm asleep rather than having to battle with everything else during the day. I don't know if it will make any difference but what the hek.

Try and keep positive, I think that is the most important thing to do.

Love,

Jane
Ellie
Regular
Posts: 277
Joined: Tue Mar 09, 2004 2:16 pm

Post by Ellie »

Jane it is great that you can go ahead this month and that you can try something new this time. I will keep my fingers crossed that you goe a good response.
My clinic will not do a cycle unless fsh levels are below 10 and even rejected one of mine at 9.9!!! So as you say we just have to wait and stay positive.
Ellie
yorkie
Newbie
Posts: 20
Joined: Fri Sep 30, 2005 5:54 am
Location: north lincolnshire

my FSH level - i'm confused

Post by yorkie »

Have already had IVF and it was sucessful but miscarried. No one ever mentioned my FSH levels though I knew my progesterone was low and was not ovulating. Responded to clomid but did not concieve.

Yesterday went for first appt at new clinic (we did not want to change but had to due to a funding issue), was told I had 'extremely' high FSH and said that I'd probably never concieve (word to effect of) but never said why. Got flustered when I asked how come it had worked before and would not answer. Got 16 eggs in last cycle but only 11 mature. She said also indicated big problem. We had 9 embryo's from that of which 5 were grade 4-5. She was also very negative about this - we don't get why.

My own research has said high FSH could mean PCOS (I know it isn't) or that my eggs are poor quality and have not got many left.

Was VERY depressed last night but need to know more about what this all means. Can anyone point me to some good info?

Thanks and keep hoping

Yorkie
randa2006
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Posts: 583
Joined: Fri Feb 11, 2005 7:32 pm
Location: Seattle, WA

Post by randa2006 »

Yorkie,
Do you know what your number is? ("high fsh")

So sorry you are getting negative feedback right now. How old are you?

I just found this fsh thread and am so glad Jane started it! FSH levels are an important topic that we get conflicting information on sometimes, so it's good to share what we find out.

I am at 15 fsh, but my clinic didn't hesitate to take my case. They feel like they are pioneers in this field and don't mind pushing the outter limits. They are not worried about their stats as some facilities are. Older women, or women with fsh levels above 10 can be a challenge and many clinics don't want to risk unsuccessful outcomes that will lower their success rates. :( (I am 44)

I wish I knew more. But maybe that will help some. Good luck.
Randa
Me 44, DH 40
ttc 0, went straight to IVF
1st EC = Feb 05, 5 frosties, no transfer attempt
2nd EC = June 05, cancelled
3rd EC = Sept 05, 4 frosties, no transfer attempt
4th EC/ET = Feb 06, 3 transf., BFN
5th EC/ET = May 06
yorkie
Newbie
Posts: 20
Joined: Fri Sep 30, 2005 5:54 am
Location: north lincolnshire

FSH

Post by yorkie »

my FSH is 9.5 which according to research I've done is high but not extremely high. I'm 33 by the way. Anybody able to tell me more...

I also wondered if dr was negative because she did not want to take us now that I feel calmer feels a bit like a hidden agenda. She said IVF very unlikely to work - I think was not going to continue until we pointed out that it had once. She was very critcal of the clinic that treated us (we were more then happy - wish my PCT did not force me to change).

Keep hoping

Yorkie
JaneR
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Posts: 151
Joined: Mon Mar 01, 2004 3:58 pm
Location: Yorkshire

Post by JaneR »

Hi Yorkie,

I have just seen your post and really feel for you. Sometimes the Consultants can be so critical and don't realise that they are dealing with peoples emotions.

Your fsh is raised but i wouldn't say it is very high, you are only just above the normal limit. My clinic say they prefer people to have an fsh of8 or under because you are guaranteed a good response but you did get 11 eggs I never get over 6 follies. I did the same this time and they got three eggs and two fertilised, you only need one embie and there is alot to be said about the quality. There are lots of girls on here who have been told their embies aren't the highest of quality and still have gone on to get a +ive.

Whic clinic are you at? I take it you have NHS funding thta may be why the Consultant was like how she was due to the restrictions of funding. Plus as you say I think alot of them think about their statistics.

There are lots of things you can do to get your FSh down, there are some good tips in the zita west book, there is accupuncture, homeopathic remedies. You are borderline normal fsh it can come down and won't take much to do so.

Hope this helps a little.

Love,

Jane
DebraP
Valued Contributor
Posts: 2784
Joined: Sun Nov 23, 2003 4:40 pm

Post by DebraP »

Yorkie, just to echo other posts. I don't think your FSH is that high. Consulting the oracle (Zita West's book) she rates 8-10 as "fair. Response is likely to be between normal and slightly reduced - though it will vary widely."

I've had my FSH vary between 14.4 in January to 8.9 in Sept.

Good luck
Debra.
Me: 44, DH: 31
Game Over.
Dates: Aug 02 - May 06
Tries: 5 fresh + 4 frozen.
Results: 1 daughter, 2 m/c, 1 ectopic.
yorkie
Newbie
Posts: 20
Joined: Fri Sep 30, 2005 5:54 am
Location: north lincolnshire

FSH

Post by yorkie »

thanks for being so positive - i'm now at Leeds (its a long story but my PCT refused funding so I first went to Hull as 15 miles away - and then I finally won my appeal but have to go to Leeds - 65 miles away)

A lot of what the dr said is contradicted in their booklet. She also told me my emby's must have been crap and then 'we don't just freeze anything' as if Hull did!

Am still really baffled by her response and her refusal to give direct answers - Prof Killick at Hull was happy to answer any q's and appreciated that I could understand (have a science degree).

Am getting my notes from Hull to see what they thought about my FSH - they never mentioned it. Also Leeds were not interested in what Hull did! They assumed that Hull gave me urtogestan becasue of my 'high' fsh but Hull do that as standard (would not listen to me)

Was miserable last week - feeling more positive now

Yorkie
Smita
Valued Contributor
Posts: 2817
Joined: Sat Jun 04, 2005 2:53 am
Location: From India,living in Abu Dhabi

Post by Smita »

Yorkie,
i had an fsh of 15 in Jan, which came down to 8.5 in April- of its own accord- i don't know for sure if the healthy eating and yoga helped- like to think it did..I had 7 follies of which 5 fertilised, 3 were transferred(one took) and 2 frozen.. I would think 9.5 is not great, but not a reason for your clinic to be rude about- if anything they shd be supportive..

Also,
uterogestan, is progesterone- nothing to do with FSH- wonder why your doc is talking thru her/his hat- must have a screwed up personal life tobe mean to you like this.
And it is standard for most clinics to give progesterone support for women going thru ivf- I'm totally baffled and upset with your consultant..

Wishing you lots of patience and luck..looks like you really need heavy doses of both with this clinic... sounds childish Iknow- but isn't complaining allowed- as in dont they have a complaint box or something?

smita
me-32, dh 40
ttc 4+ years
4 failed IUI's
1st ICSI +ve 17/6/05:)
Baby girl Dhruvaa born on 14/02/06
[img]http://tickers.TickerFactory.com/ezt/d/2;53;30/st/20060214/n/Dhruvaa/dt/8/k/07ce/age.png[/img]
Jeni Babes

Post by Jeni Babes »

8) 8) 8) Hi guys

i am BACK!!!! I have still to catch up reading all the posts but just sending Loving hugs to you all....

Guess what??? not only am I relaxed and chilled after my fab month away....but all that jigging brought on AF...yipee....

i was at the hospital yesterday and they are sending me for a short certrotide cycle on the next AF.... :shock: :D :D

I am happy BUT they seem to think that it will not work??? My ovaries won't reapond. I asked about testing for FSH ( if you remember mine was 18 at last cycle and they still let me go through 2 weeks of stimming before cancelling). But they will not do a test ???they just want me to go ahead whatever my fsh level is???? I am totally confused about this but although i know i asked all the right questions ( as per ZITA) I didn't get any helpful answers from the consultant. NHS!!!???

Anyway DH and I are going to just take each step at a time and go private after this if it doesn't work.

Apart from the above we had a fab holiday...it felt more like the early days when we first got together, lots of loving and romance...A real healing of the wounds we both have had since going through the past 2 years loss of babies and IVF tmt.

So I'll spend more time with you all over the next week. For now I have a month worth of laundry, mail and friends/family to catch up with.

loads of PMA, Hugs and loving smiles to you all.

jen
xxx
Sand
Board Veteran
Posts: 3364
Joined: Sun Mar 14, 2004 11:35 am
Location: Lancs, England

Post by Sand »

Hi Jeni .. This is so strange .. I went for a consultation at my new clinic last week. It was suggested I would do a Certrotide cycle, which I'd never heard of. Since then, 2 other folk on this Site have mentioned it ! Maybe it's the new craze !

Sandra x
Me 41 yrs old - dh 49 yrs old. ttc 110 yrs.
1st cycle (ICSI)....Mar 04 -ve.
2nd cycle (ICSI)....Aug 04 -ve.
3rd cycle FET........May 05 -ve.
4th cycle (ICSI) ... Feb 06 -ve
5th cycle FET ..... Feb/Mar 11
Babysoft
Regular
Posts: 122
Joined: Wed Aug 03, 2005 8:41 pm

High FSH

Post by Babysoft »

Hello All,

I've been trying to read the post to get some more information on why my FSH levels are so high. This month was the first time I had ever heard anything about FSH...to be honest, my main concern was ovulating and having my cervix opened enough to conceive. Well I've been thrown a curve ball :x I just found out last week that my FSH levels are at 38.4...which is extremely high. I have no idea why they are this high and the most frustrating part is that my doctor isn't giving me any clear answers as to what I need to do to lower them. I'm really feeling depressed. I had a visit with my Dr.'s office on Friday and he just gave me the run down on what it could possibly be...he said since I am still rather young, he doesn't believe it's premen. I am now waiting on a blood test to see whether or not it is anitibodies fighting my ovaries, because this seems to be another cause for high FSH. I want to know if anyone has done anything in the past to lower FSH or if anyone has conceived after having or while having high FSH.
[img]http://tickers.TickerFactory.com/ezt/d/1;20717;81/st/20090217/dt/1/k/4854/s-preg.png[/img]
Jeni Babes

Post by Jeni Babes »

Oh BABYSOFT...poor you...what a difficult time you are having. I can only say that take on board what others have said on the site. Also that one month FSH can be high and 4 months down the line normal.

I remember one lady on the site had a high (80 odds) FSH and she kept
testing for 10!!!!! months until it came down to a reasonable level to do ivf.
So keep up the PMA cause you don't know what's around the corner.

SAND- what's all this about us having short cycles????
I was told told it is easier to stop the drugs and cancel when on this cetrotide cycle. MY doc not that impressed that I will respond so I guess that's why for me. I am NOT willing to take this negativity lying down. I keep saying I was pregnant natuarally this time last year, but it seems that even to them an FSH of 18 is over the hill. I think we are defianatly going to go private (if this bombs). To get some 1:1 instead of trying to fit in with an IVF programme for the masses. I know this general programme works for so many people (80% ) but it seems that i am one of the 20% that needs some TLC. And there is no funding for that. Pity!!!

anyway how's everyone else doing? Jane?

take care and keep up the PMA....


Jen
xxx
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